About - Alastair Kent OBE

Patient Advocacy: Alastair Kent OBE

Alastair Kent has worked in the field of genetic and rare disease healthcare for over 20 years, representing the interests of patients on numerous public and private sector platforms; he is president of the European Genetic Alliances Network (EGAN), immediate past chair of the European Platform for Patient Organisations, Science and Industry (EPPOSI) and the EU Committee of Experts on Rare Diseases, among others. He also served as director of Genetic Alliance UK, a national charity supporting all those affected by genetic conditions and an alliance of over 180 patient organisations. Alastair is the Chair of the BBMRI-ERIC Stakeholder  Forum.

http://www.bbmri-eric.eu/
http://alastairkent.com/

Activities

  • Latent Bones (June 04, 2019)
    Exhibition Volume II
    Contributions
  • Latent Bones (May 21, 2019)
    Exhibition Volume I
    Contributions
  • Latent Bones (May 21, 2019)
    An Exhibition in two parts by Art & Science first year Master Students in collaboration with BBMRI-ERIC
    Contributions
  • ROUNDTABLE (October 10, 2018)
    BBMRI-ERIC | Collaboration partner indepth session II – Video talk with Patient Advocacate Mr. Alastair Kent OBE
    Project collaborator
 
Alastair Kent OBE
(c) Photo BBMRI-ERIC homepage